A manual for the family, friends and loved ones of ICU patients, courtesy of http://www.ICUsteps.org, pioneers in the United Kingdom in the area of ICU patient advocacy
One of the most important roles you can play as a family member of someone in the ICU is as a medical historian, specifically in terms of assuring that attending physicians are made fully aware of the patient’s overall pre-ICU cognitive state. Without this information, neither RNs nor MDs nor therapists can properly assess the current condition of your loved one.
No matter how assertive they are in everyday life, the conditions which brings a person to the ICU will utterly disable them from properly advocating for themselves while they are patients there. It is absolutely critical -often literally a matter of life or death – that loved ones be near their patient 24/7 in the ICU.and that they be willing to be aggressive to a degree which most of us would not think of being outside the hospital.
A change in mentation is inevitably more quickly apparent to a family member than to even the most attentive clinician. Such changes can often be stopped in their tracks by a simple medication adjustment. A delayed or absent adjustment can lead to a very rapid decline and often a quick death.
“[Hospitals must] make a culture shift in how they handle their sickest patients in the ICU.” Wes Ely, M.D. MPH, Professor of medicine and director of the ICU Delirium and Cognitive Impairment Study Group at the Vanderbilt University School of Medicine
This first post marks the beginning of what hopefully over time will become both a tool for American ICU patients and their families as well as an occasionally thoughtful discussion of the roadblocks which now stand in the way of better treatment for the ICU patient, whether the patient is an inpatient still in the ICU, an inpatient in a “step-down” hospital unit or after discharge from the hospital as an outpatient.
It is directed principally towards an American readership because it is in the United States that I seek to help effectuate change in ICU practices, particularly with regard to the treatment of ICU delirium. Regrettably and frankly shamefully, the United States is far behind the United Kingdom in this area.
The purposes of this blog are two-fold. First, it is to help ICU patients and their families understand that the perils of hospitalization for a critical illness extend far beyond the confines of the original illness itself. Second, it is to promote positive patient-centered changes in ICU “culture”, in particular in recognizing the hazards of ICU delirium as well as the significant role which family members can play in helping their loved ones survive their ICU and hospital stay while minimizing the brain damage which can lead to disabling long term cognitive impairment.